Mesa redonda de padres

Mesa redonda de padres

8:00 p. m. ET | 7:00 p. m. CT | 6:00 p. m. MT | 5:00 p. m. PT

New Schedule: The Parents’ Roundtable will meet quarterly starting in 2026. We will meet in January, April, July, and October of 2026.

Our April Roundtable guest will be Emma Weatherley, the purpose-driven Managing Director of FSHD Global. Diagnosed with FSHD in her early 30s, Emma quickly forged strong connections within the FSHD community, becoming a prominent advocate for FSHD, Muscular Dystrophy, and the rights and inclusion of people with disabilities.

In 2021, Emma joined the FSHD Global board as Executive Director, where she has been instrumental in advancing Australian diagnostics and enhancing clinical trial readiness. With a background in senior leadership roles across risk, compliance, and assurance in the public sector, Emma brings a wealth of experience and expertise to her role.

The FSHD Global Research Foundation, established by and for individuals with FSHD, finds its values epitomized in Emma’s leadership. Her personal experience with FSHD gives her a unique and empathetic understanding of the challenges faced by individuals with FSHD, their families, carers, and loved ones.

Join us for our Parents’ Roundtable on the 3rd Tuesday, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

Nos encantaría conocer tu opinión y contar con tu participación. Únete a nosotros y comparte tus ideas, preguntas, respuestas, consejos y trucos.

Ally Roets y Sam Ray
Parents’ Roundtable Directors

Más información sobre el Mesa redonda de padres