Wellness Hour – “Movie Night”

5:00 p. m. ET | 4:00 p. m. CT | 3:00 p. m. MT | 2:00 p. m. PT

This month, we will discuss a film, I Didn’t See You There. The idea is for you to watch it ahead of time and then join us on Zoom for the discussion. But if you don’t have time to see it in advance, join us anyway! The conversation is the real point.

The film has won numerous awards, including  U.S. DOCUMENTARY DIRECTING AWARD – Sundance Film Festival and WINNER OF GRAND JURY AWARD – Full Frame Film Festival. See details below.

From March 1 to 14, the film is available to stream for free by FSHD Society members. Here is the link. Please do not share outside of Society members. Because there may be a gap between the time you watch the video and the March 13 Wellness Hour, we suggest that you write down your most important observations immediately after watching. In the breakout sessions (of no more than 7 people each), we would like you to share your thoughts and feelings about the documentary. What responses did it produce for you? For others that watched it with you?

I Didn’t See You There

Year: 2022 | Run Time: 76 minutes​​ | Language: English | Captions: Yes | Includes: Transcript | Director: Reid Davenport | Producer: Keith Wilson

As a visibly disabled person, filmmaker Reid Davenport sets out to make a film about how he sees the world, from either his wheelchair or his two feet, without having to be seen himself. The unexpected arrival of a circus tent outside his apartment in Oakland, CA leads him to consider the history and legacy of P.T. Barnum’s Freak Show and its lingering presence in his daily life in the form of gawking, lack of access, and other forms of ableism. Informed by his position in space, lower to the ground, Davenport captures indelible images, often abstracted into shapes and patterns separate from their meaning. But the circus tent looms in the background, and is reverberated by tangible on-screen interruptions, from unsolicited offers of help to careless blocking of ramps. Personal and unflinching, I Didn’t See You There forces the viewer to confront the spectacle and invisibility of disability. Offering both a perspective and stylistic approach that are rarely seen, Reid brings an urgently needed storytelling eye to filmmaking with a documentary that is powerful and emotional, thoughtful and raw, intimate and political.

La Hora del Bienestar está abierta a todos los miembros de la comunidad FSHD. Es el momento de disfrutar de la compañía de otros pacientes con FSH, compartir retos, hablar de lo que te funciona y sentirte validado y apoyado en cualquier situación por la que estés pasando.

Abrimos la sala de Zoom media hora antes (4:30 p. m. ET). para que los miembros puedan disfrutar de un foro abierto en el que debatir cualquier tema que les interese. Rick Whitehead estará allí para darles la bienvenida. La Hora del Bienestar se ha convertido en un evento tan popular que nunca tenemos tiempo suficiente para que todos puedan compartir lo que piensan, por lo que hemos pensado en probar este enfoque.

Nuestra reunión mensual de Zoom sobre bienestar se celebra el segundo lunes de cada mes, de 5:00 a 6:00 p. m. (hora del Este). Cada mes, tendremos un tema para iniciar la conversación, pero se trata de una reunión informal y, si la discusión se desvía hacia otros temas, ¡no pasa nada! Esperamos que te pases por allí para disfrutar de la compañía de algunas de las personas maravillosas de nuestra comunidad.

Si está interesado, regístrese haciendo clic en el enlace que aparece a continuación. Solo necesitas registrarte una vez para la serie mensual. Recibirás notificaciones de Zoom con la información de la reunión.

¿Necesitas consejos sobre cómo usar las funciones de Zoom? Here’s un video que explica muchas características básicas.