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Now available. Read our 2025 Impact Report

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT

Join us for an insightful discussion with special guests Jenny and Tony Teel! This dynamic married couple runs a popular YouTube channel where they share valuable information and provide encouragement within the context of their interabled relationship. Tony, who lives with FSHD, has led them on a remarkable journey of discovering effective ways to tackle challenges together, and at the heart of their channel is the empowering attitude, “You’re stronger than you know.” We are thrilled to have them share their experiences and offer valuable advice on relationships while living with FSHD.
FSHD Young Professionals is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect, collaborate, and provide networking opportunities. Whether you’re just graduating, starting a new position, or already on a career track, the FSHD Young Professionals group will help you develop a valuable network of friends facing similar challenges.
Nuestro grupo está organizado y moderado por voluntarios que están deseando conectar contigo. Nos reunimos dos veces al mes a través de Zoom. Una de las reuniones se centrará en escuchar a un profesional hablar sobre un tema concreto, con tiempo para preguntas y respuestas o debate; la otra será una hora social centrada en la conversación, la conexión y la diversión. Participa en ambas reuniones o solo en una, según te lo permita tu agenda.
Mark your calendar for the second Tuesday at 8pm ET/5pm PT and the fourth Saturday at 11am ET/8am PT. Once you join the group, no need to register again; you will be sent regular reminders and the Zoom link.
You can also join the conversation on Discord…
To contact us directly, please email: youngprofessionals@fshdsociety.org
