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By Dr. Lucienne Ronco This is a question we often hear from FSHD patients. Human hormones, like estrogen, impact muscle health in general, not just in disease. In healthy muscle, […]
Originally posted to Business Wire on March 18, 2026 GAITHERSBURG, Md.–(BUSINESS WIRE)–Mirecule, Inc., a leader in Antibody RNA Conjugate (ARC) therapeutics targeting rare neuromuscular diseases, today announced an expansion of […]
Dr. Lucienne Ronco, Chief Science Officer of the FSHD Society Originally published on March 19, 2026 Edited for clarity as of March 20, 2026 Today we received news that Roche […]
Dear members of the FSHD community, Following your request for updates about our FSHD clinical development programme, today I share the news that we have made the difficult decision not […]
Press release originally posted to the MDA website on Jan. 27, 2026 Organizations Join Forces to Map How Human Muscle Regenerates Muscular Dystrophy Association-led research collaboration with FSHD Society, LGMD2L […]
January 12, 2026, Originally posted to Business Wire Highlights: Apitegromab Biologics License Application (BLA) resubmission and U.S. launch, following FDA approval, are anticipated in 2026 for the treatment of children […]
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