Navegación “Early Onset or Infatile - FSHD Society”

What a New Study on FSHD and Mortality Means for Our Community

What a New Study on FSHD and Mortality Means for Our Community

Publicado el mayo 18th, 20265/18/26

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Expanded Access Crash Course with Ally Roets and Dr. Michelle Mellion, FSHD Straight Talk

Expanded Access Crash Course with Ally Roets and Dr. Michelle Mellion, FSHD Straight Talk

Publicado el marzo 30th, 20263/30/26

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Early Onset Insight: Findings from Dr. Erasmus’ 5yr Early Onset Study – Oct 2025 Parents’ Roundtable

Early Onset Insight: Findings from Dr. Erasmus’ 5yr Early Onset Study – Oct 2025 Parents’ Roundtable

Publicado el marzo 30th, 20263/30/26

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Whole Body MRI Measures in Pediatric FSHD Patients – November 2025 Parents’ Roundtable

Whole Body MRI Measures in Pediatric FSHD Patients – November 2025 Parents’ Roundtable

Publicado el marzo 30th, 20263/30/26

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Pediatric FSHD – Euro-NMD Webinar Series, Episode 3

Pediatric FSHD – Euro-NMD Webinar Series, Episode 3

Publicado el 18 de junio de 20256/18/25

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