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February 11, 2023 2:00pm – 4:30 pm Join us for this informative discussion about trials while sipping on a special pre-Valentine’s Day cocktail (N/A available) celebrating FSHD. Have you wondered about participating in a trial? Are you involved in a trial? Come join us to discuss the requirements and how you can prepare for […]
Celebrate World FSHD Day & Father’s Day at the ballpark with the PNW Chapter! Saturday, June 17, 2023 6:00pm Cheney Stadium, Tacoma Tacoma Rainiers vs. Albuquerque Isotopes After you register, Selina will mail your free tickets!
Pacific Northwest Walk & Roll Sunday, September 10, 2023 12:00 PM Cockrell Cider, 6613 114th Ave Ct E, Puyallup, WA. 98372 Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a […]
4:00-7:00pm ET | 3:00-6:00pm CT | 2:00-5:00pm MT | 1:00-4:00pm PT Pacific Northwest Day at the Ball Park Sunday, June 9, 2024, 1:00 pm - 4:00 pm PT WHERE: Cheney Stadium, 2502 S Tyler St, Tacoma, WA 98405 Details: Greetings my PNW FSHD Chapter friends! SUMMER is just around the corner and that means time […]
2024 Pacific Northwest Walk & Roll to Cure FSHD Saturday, September 14, 2024, 9:00am Owen Beach Pavilion, Tacoma, WA Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising […]
Pacific Northwest Chapter Winter Education Meeting November 2, 2024, Noon to 2pm Topic: Strength Training for Rehabilitation and Maintenance in FSHD. Our guest speaker will be Alex Walker of Walker Weightlifting. Together with a few of his FSHD clients Alex will share: - insights into the benefits of strength training for rehabilitation and maintenance in […]
Pacific Northwest Chapter New Year Meeting DATE: Saturday, January 25, 2025 TIME: 12:00 to 2:00pm PT WHERE: Both in-person at the Sellwood-Moreland Library Community Room (7860 SE 13th Ave, Portland, OR) and virtual via Zoom. Please RSVP for the Zoom link. DETAILS: Trish Kean has been a licensed massage therapist since 1998 and has had […]
Please join us for a PNW virtual meeting, where we will discuss navigating access to the FORWARD clinical trial.
Register for the Pacific Northwest Sips & Smores and support our annual FSHD fundraising campaign. Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join your online fundraising efforts. Then we will celebrate the Pacific Northwest together with sips and s'mores!
Mix it Up Social Hour - We will mix a special seasonal cocktail together, toast the season, and spend some social time together. <p data-pm-slice="1 1 RSVP Here
Hora social Mix it Up: prepararemos juntos un cóctel especial de temporada, brindaremos por la temporada y disfrutaremos de un rato de convivencia. Confirme su asistencia aquí.
Hora exacta por determinar. Acompáñenos en Portland, Oregón, para una enriquecedora práctica de QiGong con Trish Kean, una de nuestras compañeras con FSHD. Trish lleva practicando QiGong a diario desde 2005. Se ha formado bajo la tutela del maestro Zhongxian Wu y cuenta con la certificación de varios linajes de QiGong. Ha descubierto que la práctica del QiGong le resulta muy […]
Join the PNW Chapter for our March Meetup on March 14th at 3pm PT! Topics include: Attending the FSHD Connect Conference - what to expect A new nutrition recommendation for FSHD Local upcoming meetings and events Answering your questions Register Now
Sunday, June 14th, 2026 Join the Pacific Northwest Chapter on June 14th to watch the Tacoma Rainiers play against the Albuquerque Isotopes! Cheney Stadium, Tacoma - 2502 S Tyler St, Tacoma, WA 98405 12:00pm if you'd like to join us for a pre-game photo on the field. The game starts at 1:35pm and ends around […]
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