Lighting the Way to a Cure

Loading Events

2020 FSHD Connect

Jun 27 @ 8:00 am - Jun 28 @ 2:00 pm

FSHD Connect is the largest biennial educational and networking gathering of FSHD patients and families, researchers, and clinicians.

Our conference brings together hundreds of patients, family members, researchers, physicians and health experts for a day-and-a-half of immersive learning and community building. Our 2020 meeting will feature talks by thought leaders on the latest in scientific research and medical management of FSHD, living with FSHD, and raising “an army of activists.” Breakout sessions will address topics to help you cope and live better with FSHD, including exercise and physical therapy, strategies for dealing with practical and emotional transitions, caregiving, “life hacks,” and much more.

Register Button