Lighting the Way to a Cure

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2020 FSHD Connect

Jun 27 @ 8:00 am - Jun 28 @ 2:00 pm

UPDATE regarding COVID-19. The safety of our community is our highest priority. Please know that we are closely monitoring the situation to determine the best course of action with regard to this year’s FSHD Connect conference. As of now, we are going forward as planned.  We will send out a notification if there is a change of plans. In the meantime, we hope you and your loved ones stay healthy and safe. Please visit our FSHD Society Sequester Camp page for news updates and events to support and connect our community.

FSHD Connect is the largest biennial educational and networking gathering of FSHD patients and families, researchers, and clinicians.

Our conference brings together hundreds of patients, family members, researchers, physicians and health experts for a day-and-a-half of immersive learning and community building. Our 2020 meeting will feature talks by thought leaders on the latest in scientific research and medical management of FSHD, living with FSHD, and raising “an army of activists.” Breakout sessions will address topics to help you cope and live better with FSHD, including exercise and physical therapy, strategies for dealing with practical and emotional transitions, caregiving, “life hacks,” and much more. For more information about FSHD Connect, click here.

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To see the agenda click here.

To view a list of speakers click here.

To learn about our sponsorship opportunities click here.