2022 FSHD Connect

FSHD Connect is the FSHD Society’s flagship educational conference. Held every two years, it is the world’s biggest networking event for FSHD, bringing together hundreds of individuals and families living with FSH muscular dystrophy, clinicians, and researchers for two days of immersive learning and workshops.

You’ll find out about the latest research, drug development, and clinical trials, as well as a wealth of news you can use, from managing symptoms to navigating the challenges of daily life. You’ll be meeting and learning from the greatest experts—other patients and families like yours!

We have reserved a block of rooms at the conference hotel and can’t wait to see you there!