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Event Series:
FSHD University
Mar 20 @ 1:00 pm - 2:00 pm
Raise Your Voice! Advocacy Call to Action – FSHD University with Anna Gilmore
19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT
Are you ready to make an impact for FSHD research? Join us on March 20 as we discuss our call to action, and hear how you can be a part of diversifying funding sources for much needed research. This year, in partnership with the Muscular Dystrophy Association (MDA), we are campaigning to get FSHD included on the list of eligible conditions in the Peer-Reviewed Medical Research Program (PRMRP).
Kevin Brennan of Bluebird Strategies will share some history of the PRMRP, and why it’s a good fit for us to pursue right now. We need our elected officials to hear from the FSHD community loud and clear: rare disease research is critical, now more than ever.
We will share all the tools you need to get started, and make a difference today. We need your voice!
