5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT
“Marion or the Metamorphosis”
Monday, November 10th, 2025
From 4:00 p.m. – 5:00 p.m. EST Watch the Film
From 5:00 p.m. – 6:00 p.m. Wellness Session Discussion (everyone welcome)
The next FSHD Wellness Hour on November 10, 2025 will be a Movie Night and feature an amazing new film focused on one woman’s journey with FSHD!
From 4:00 p.m. – 5:00 p.m. EST (one hour before the regular starting time for our monthly Wellness Session, and in place of the open discussion that occurs from 4:30 p.m. – 5:00 p.m. facilitated by Rick Whitehead), we will stream the film “Marion or the Metamorphosis,” which is 52 minutes long (brought to us by FSHD Society). The regularly scheduled Wellness Session (from 5:00 p.m. – 6:00 p.m.) will feature a discussion of the movie.
Movie Summary: “Marion or the Metamorphosis” is a documentary film by Laëtitia Moreau and Marion Sellenet that follows the life of Marion Sellenet, a 35-year-old artist who lives with facioscapulohumeral muscular dystrophy (FSHD). The film chronicles Marion’s personal journey, exploring themes of identity, transformation, and resilience as she navigates living with a progressive disease. It captures Marion’s creative process, her daily challenges, and her evolving self-image, while also shedding light on the impact of FSHD on her life as an artist and individual. Through candid and intimate storytelling, the documentary reflects on how Marion adapts to physical limitations, reinventing herself and her art, ultimately celebrating her courage and inner metamorphosis.
We hope that you will join us. If you plan to come to the Wellness Session Discussion Group and have not yet seen the film, be sure to join us at 4:00 p.m. EST to see the film!
Feel free to invite family members as well as friends to join us for both hours of this Wellness Session. The film is beautiful as well as informative, and we’re sure that you will enjoy your time.
Remember to mark your calendar about the timing for this event!
For our European friends, don’t forget that the US has changed their clocks back to regular standard time, from day-light savings time.
Our monthly Zoom meeting on Wellness is held on the second Monday of each month at 5:00-6:00 pm ET. Each month, we’ll have a conversation starter topic, but this is an informal gathering and if the discussion veers off in other directions, that’s OK! We hope you’ll drop by to enjoy the company of some of the wonderful people in our community.
We will open the Zoom room a half hour early (4:30 pm ET) so members can enjoy an open forum to discuss whatever is on their minds. Rick Whitehead will be on hand to welcome you in. Wellness Hour has become such a popular destination and we never have enough time for everyone to share what’s on their minds, so we thought we’d try this approach.
If you are interested, please register by clicking on the link below. You only need to register once for the monthly series. You’ll receive notifications from Zoom with the meeting information.
Do you need tips on using Zoom features? Here’s a video that explains many basic features.
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