Lighting the Way to a Cure

Loading Events

Sharegiver Hour – Mindfulness with Jen Egert

  • This event has passed.

Jan 26, 2021 @ 8:00 pm - 9:00 pm

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT

We are rebranding this virtual meeting from “Sharegiver Hour” to “Family Hour” in recognition of the fact that many family members are not directly providing care. But FSHD affects the whole family. This monthly meeting is for everyone who has loved ones with FSHD but do not have FSHD themselves. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other families.

We all can use guidance in self-care, so this month we are delighted to invite Dr. Jennifer Egert, a psychologist who has trained in mindfulness techniques and is particularly interested in chronic conditions, coming from a family affected by FSHD.

Please respect our rules restricting this meeting to family members who do not have FSHD. Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.