8:00 – 9:00 PM ET
This monthly meeting is for those of you who are providing care to loved ones with FSHD. To spark discussion, we’re recommending this short article in Time magazine: How to Help a Caregiver Without Saying Stay Positive. Don’t worry if you don’t have time to read it. Join us anyway! For those who are interested, here is the recent book by Kate Washington who wrote the article: Already Toast: Caregiving and Burnout in America.
This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Please respect our rules restricting this meeting to caregivers (or “sharegivers,” as Isaac Prilleltensky has proposed, because providing care to loved ones is a two-way street).
Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.