Lighting the Way to a Cure

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Jun 29 @ 8:00 pm - 9:00 pm

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT

We’ll be discussing the recent Fulcrum clinical trial results with the FSHD Society’s June Kinoshita, director of research and patient engagement. What do these results mean, and how are you and your loved ones with FSHD processing the information?

This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers.

Please respect our rules restricting this meeting to caregivers (or “sharegivers,” as Isaac Prilleltensky has proposed, because providing care to loved ones is a two-way street). Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.