8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT
This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. This month, we have a recommended reading, this NPR story, “Unpaid Caregivers Were Already Struggling. It’s Only Gotten Worse During The Pandemic.” A recent study found that family caregivers were disproportionately affected by the pandemic, with large percentages reporting mental health issues. The study underscores the lack of societal and healthcare support for caregivers. How has the past year affected you? What kind of support from family, society, and healthcare providers, would make a difference?
Please respect our rules restricting this meeting to caregivers (or “sharegivers,” as Isaac Prilleltensky has proposed, because providing care to loved ones is a two-way street). Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.