8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT
We’ve invited Matt Beke, a clinical dietician at the Fixel Center for Neurological Diseases at the University of Florida, to join us this evening to talk about food, health, and self-care. Matt is a Registered Dietitian Nutritionist and current Nutritional Sciences Master’s student at UF. He has cared for the most vulnerable members of our community with compassion using the latest nutrition therapies. Under the mentorship of Dr. Bobbi Henken, he has worked to further the understanding we have of probiotics and the microbiome. We look forward to an informative presentation followed by lots of Q&A!
This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers.
Please respect our rules restricting this meeting to caregivers (or “sharegivers,” as Isaac Prilleltensky has proposed, because providing care to loved ones is a two-way street). Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.