WHEN: Saturday, December 12th 2-3:30 CT
WHERE: Via Zoom
WHAT: Hosted by Rachel Sartin, CenTex Chapter Director.
FSHD UPDATES: Mark Stone, CEO of the FSHD Society, and Beth Johnston Chief Community Engagement Officer will join us to share updates on therapy development, clinical trials, and the FSHD Community overall.
SPECIAL GUEST: Dr. Jaya Trivedi from UT Southwest in Dallas – one of the newest sites for the FSHD Clinical Trial Research Network!
We welcome everyone across Texas to join us!
EVERYONE: Bring your favorite drink or goody to nibble as we hear about these exciting developments. And then we will take some time for fun and merriment. Please bring your favorite Holiday appetizer recipe to share, and wear your best ugly Holiday sweater!
Looking forward to ‘seeing’ you!
We hope you can join us! ~ Rachel Sartin, Central Texas Chapter Director