Please join us VIRTUALLY for our first chapter meeting of 2020!
When: Saturday, March 28th from 10am – 1pm
Here’s our agenda:
- Voice of the Patient: we’ll talk about the significant importance of this event and how we can get involved.
- Surveys: we’ll talk about the surveys that are part of the Voice of the Patient and why they’re so important. We’ll also have spare laptops to take the surveys if you haven’t already done them.
- Community/family time: we’ll simply spend some time talking and sharing together as a community/family. Our successes, our struggles, our hopes, our challenges, our dreams. We’re stronger together and there is strength in knowing we’re not alone with FSHD.
We hope to “see” you virtually and look forward to connecting again as a family.
~Dave Lukas, Chicagoland Chapter Director