Please join us for a casual Chapter Coffee Hour! Bring your favorite mug and join us over Zoom for some friendly catch-up, FSHD Society updates, and maybe even a trivia question or two.
At our last chapter meeting this spring, Elan (a high school student who’s being mentored by Dr. Nagar) explained that he’s working on an independent research project to learn more about FSHD. He’s worked very hard to create an anonymous survey that asks questions about symptoms, age of onset, etc. all in the hopes of learning more about FSHD in our Chicago community. Elan will talk more about his survey at our virtual meeting, but if you’d like to get a jump start on filling it out for him and Dr. Nagar, you can fill out the survey here. Reminder that this is an anonymous survey and completely optional for you to fill out.
We hope to see you there!
~Dave Lukas, Chicago Chapter Director