Lighting the Way to a Cure

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Colorado Virtual Chapter Meeting

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Mar 13, 2021 @ 11:00 am - 1:00 pm

Saturday, March 13, 2021

11:00am-1:00pm Mountain Time

Join Zoom Meeting:, Meeting ID: 931 4982 4739

One tap mobile: +13462487799, 93149824739#

Or by phone: +1 346 248 7799, Meeting ID: 931 4982 4739

In this meeting, we want to hear from all of YOU about your creative life hacks, adaptations or modifications, products, and/or services that have helped you in your journey with FSHD. You may want to share a video showing off your technique for reaching something on a top shelf, share photos of your accessibility ramp, recommend an amazing massage therapist, or just share a link to your favorite encouraging blogger, etc.

We will also have the pleasure of hearing from Karen Hookstadt, OTR/L, an Occupational Therapist who works with Dr. Wicklund at UCHealth. Karen will be educating us about OT in general, and engaging in our discussions about all your life hacks and adaptations.

But first, in order to make this meeting a success, WE NEED YOU TO SHARE your best hacks, adaptations, and recommendations! This will become a rich shared resource for our entire chapter to reference moving forward.

Submit your life hacks here by March 5th:

We look forward to compiling all your wonderful ideas and sharing these resources together on March 13th! See you all soon.

~Amanda Hill, Colorado Chapter Director


Mar 13, 2021
11:00 am - 1:00 pm
Event Categories:


Colorado Chapter


Denver Colorado
CO United States + Google Map