Lighting the Way to a Cure

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Early-Onset Parent Roundtable

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Apr 19 @ 7:00 pm - 8:00 pm

Tuesday, April 19th

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT

Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible.

April’s guest speaker will be geneticists, Maureen Galindo from the University of Arizona.
She will give a presentation on the genetics of FSHD and will be available to answer FSHD genetic questions in terms you can understand.

We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents. We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.

Ally Roets & Sam Ray

Early-Onset Chapter Directors

Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter

Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2021, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org

Details

Date:
Apr 19
Time:
7:00 pm - 8:00 pm
Event Categories:
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Venue

Virtual
Denver, United States

Organizer

Early-onset FSHD Chapter
Email:
earlyonsetchapter@fshdsociety.org