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Lighting the Way to a Cure
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT
Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible.
This month we will hear from Katy de Valle (BApp Sc Physiotherapy) and Dr Ian R Woodcock MBBS MSc MRCPCH(UK) FRACP, two researchers from Australia who are working on a longitudinal natural history study in pediatric FSHD and the development of pediatric-specific standards of care. We will also have time to discuss Back to School, the Walk & Roll, and an exciting pediatric FSHD video project. You won’t want to miss it!
We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.
We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.
Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2021, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at email@example.com
Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter