The Early-onset FSHD Chapter is hosting a meeting for all families impacted by early-onset or infantile FSHD.
2:00 MST/PT, 3:00 MT, 4:00 CT, 5:00 ET
Our special guest speaker will be Dr. Natalie Katz, U of Rochester. A more detailed agenda will be posted soon!
Make plans to join us via Zoom for this special meeting with other families impacted by early-onset FSHD.
Questions? Contact our Early-Onset National Chapter Director, Ally Roets: EarlyOnsetChapter@FSHDSociety.org