8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT
Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.
We are excited to welcome Dr. Ray Huml as our guest this month. Raymond A. Huml, MS, DVM, RAC is Vice President of Medical & Scientific Strategy and Head of Syneos Health’s Rare Disease Consortium. Ray is also the parent to two children with FSHD. Ray published his latest reference book, “Rare Disease Drug Development: Clinical Scientific, Patient, and Caregiver Perspectives” on Nov. 9. He wrote or co-wrote three of its 25 chapters, and the rest were drafted by members of other patient communities. His daughter co-wrote the chapter on FSHD.
Dr. Huml will speak with us about the drug development process and our role in the process. He will be available to answer questions and exchange ideas.
We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.
Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter