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Early-Onset Parent Roundtable

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Jul 19 @ 7:00 pm - 8:00 pm

Tuesday, July 19th

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT

Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible.

Our guest this month will be Dr. Russell Butterfield, an Associate Professor in the Departments of Pediatrics and Neurology at the University of Utah where he directs the Muscular Dystrophy Clinics at the University of Utah, Primary Children’s Hospital, and Shiners Hospital in Salt Lake City. Dr. Butterfield’s primary emphasis is focused on genetic therapies for neuromuscular disorders and understanding genetic modifiers of severity in various neuromuscular disorders. He plans to discuss the MOVE Study, pediatric FSHD diagnosis, and will be available to answer all your FSHD questions. You don’t want to miss this opportunity to speak directly to one of the leading experts in pediatric FSHD.

We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents. We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.

Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2021, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org

Ally Roets & Sam Ray

Early-Onset Chapter Directors

Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter

Details

Date:
Jul 19
Time:
7:00 pm - 8:00 pm
Event Categories:
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Venue

Virtual
Denver, United States

Organizer

Early-onset FSHD Chapter
Email:
earlyonsetchapter@fshdsociety.org