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Early-Onset Parent Roundtable

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Mar 15, 2022 @ 7:00 pm - 8:00 pm

Tuesday, March 15th

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT

Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible.

During our March Early-Onset Parent Roundtable we will hold an open discussion to share concerns and solutions concerning the care of our children. This month we will discuss:

  • What things should I start thinking about during my child’s education – elementary, middle, high school, post-secondary (after high school) and career?
  • How do I best advocate for my child at school/in the school system?
  • Managing an IEP or 504 plan
  • Related to my child’s educational experience, what do I wish I’d have done differently/what I’m glad I did?

We hope to have a wide range of parents that will bring a variety of perspectives and experience to the meeting so that we may learn and benefit from each other’s journey. We look forward to having you in the conversation! Please join us and bring your ideas, questions, answers, and tips and tricks.

Ally Roets & Sam Ray

Early-Onset Chapter Directors

Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter

Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2021, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org


Mar 15, 2022
7:00 pm - 8:00 pm
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Denver, United States


Early-onset FSHD Chapter