Early-Onset Parent Roundtable – Gene therapies for FSHD

Tuesday, November 15th

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT

Join us for our monthly Early-Onset Parent Roundtable on the 3^rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. 

Our guest this month is Scott Harper, PhD, a leading FSHD researcher at Nationwide Children’s Hospital and The Ohio State University. Dr. Harper will be discussing the prospects for gene and molecular therapies to treat FSHD. He will explain what kinds of treatments are in development and what families can do in the short-term to be “trial ready.” This can include having your child participate in natural history studies and other ways to create a fertile environment for taking therapies into clinical trials.

We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.

Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2021, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org

Ally Roets & Sam Ray

Early-Onset Chapter Directors

Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter