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Early-Onset Parent Roundtable – Connect recap

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Event Series Event Series: Early-Onset Parent Roundtable

Jul 16 @ 8:00 pm - 9:00 pm

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT

This year’s FSHD Connect, held on June 15-16, had activities and breakouts dedicated to pediatric and early-onset FSHD. Ally Roets and Debbie Eggleston will share what happened, what was learned, and discuss how our community will follow up.

Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.

Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2023, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org.

Ally Roets & Sam Ray
Early-Onset Chapter Directors

Learn more about the Early-Onset Chapter


Jul 16
8:00 pm - 9:00 pm
Event Category:


Zoom Virtual Meeting
United States


FSHD Society
(781) 301-6060
View Organizer Website