Early-Onset Parent Roundtable

Tuesday, September 20th

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT

Join us for our monthly Early-Onset Parent Roundtable on the 3^rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. 

We are so excited to have Dr. Rabi Tawil, the co-director of the MDA Neuromuscular Clinic at the University of Rochester as our guest for the September Parent Round Table. Along with treating numerous patients, Dr. Tawil is one of the leading experts on FSHD! He has participated in, and helped organize numerous neuromuscular treatment trials. You do not want to miss this opportunity to speak with, and ask questions of, this pioneer in FSHD.

We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.

Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2021, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org

Ally Roets & Sam Ray

Early-Onset Chapter Directors

Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter