
June 11, 2026
7pm ET / 6pm CT / 5pm MT / 4pm PT
Ranae Beeker and Frank Hanley team up to present a summer safety workshop. This workshop will discuss water safety, walking and hiking, driving and travel, water (hydration) and eating, and more. There will be time to share your suggestions, cheats, and travel experiences.
As a reminder: Participants must register for this meeting in order to receive the Zoom link. After registration, you’ll get a confirmation email that allows you to add the link to your digital calendar.
Register NowFor people living with FSHD who are interested in exercise and fitness, we meet on the 2nd and 4th Thursday of every month at 12:00 pm (noon) U.S. Eastern Time. Come dressed for exercise and have on hand any safety and assistive devices you need. Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider.
Please come prepared with a stable chair or stool (back of chair is optional).