Lighting the Way to a Cure

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FSHD Family Day – University of Rochester

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Feb 20, 2021 @ 8:45 am - 2:10 pm

8:45 a.m. – 2:10 p.m. ET

Virtual Meeting using Zoom Cloud Meeting

An up close and personal opportunity to find out about exciting advances in research on FSHD treatments, along with essential information about staying in good shape. Learn what you can do to make a difference for yourself and for your community. Hosted by the renowned team at the University of Rochester’s Fields Center for FSHD Research.

Download the 2021 Rochester Family Day invitation.


Rabi Tawil, MD

University of Rochester

“Getting ready for upcoming clinical trials”

Scott Harper, PhD

Ohio State University

“Promising new FSHD therapies focused on blocking the DUX4 gene”


Leo Wang, MD

University of Washington

“Tracking FSHD disease progression with MRI”


Beth Johnston

FSHD Society

“FSHD Society Community Updates”


Lexi Pappas

Patient Advocate


Katy Eichinger, PT, PhD

University of Rochester

“Physical Therapy and FSHD”




For additional information or to register by phone, please call Karen Lee at 585.275.3614 or email us at

You will receive an email from the Fields Center on Wednesday, February 17th that will contain the Zoom meeting details with the link and call-in details if needed.


Feb 20, 2021
8:45 am - 2:10 pm
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