Lighting the Way to a Cure

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FSHD Radio welcomes Levi Benson and Jenny Hasenjaeger

Nov 20 @ 8:00 pm - 9:00 pm

FSHD Society radio welcomes singer songwriters Levi Benson and Jenny Hasenjaeger
Jenny Hasenjaeger
FSHD Society Radio with Levi Benson and Jenny Hasenjaeger
Levi Benson

FSHD Society radio welcomes singer songwriters Levi Benson and Jenny Hasenjaeger this month. They share an FSHD diagnosis and a love of music.

Levi Benson was featured earlier this year in FSHD Advocate and on our blog. Since the time he performed his first childhood song, “I Love My Lips,” made famous by VeggieTales’ Larry the Cucumber, Levi Benson’s lips have been crooning tunes. Those on the listening end of the Kansas musician’s performances have been loving every note.

When she was younger, all Jenny Hasenjaeger needed was a round hairbrush for a mic; a Reba, Patsy or Ella cassette; and a big imagination, and the concert was on. Today, the Nebraska native has a hook book, a digital recorder and that same big imagination, and puts lyrics to melodies.
Join us via Facebook Live on Wednesday, Nov. 20 at 8 p.m. Central/9 p.m. Eastern for our live interview with Levi and Jenny.