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FSHD Radio: Hot off the Press with Kristin Zwickau and Ally Roets

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Oct 27, 2022 @ 8:00 pm - 9:00 pm

Thursday, October 27th

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT

On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.

This month, our Hot off the Press guests are Kristin Zwickau and Ally Roets, chapter directors for our Early-Onset FSHD Chapter. Kristin and Ally will be discussing Early-Onset FSHD as well as the critical importance of the MOVE study for pediatric patients. The Early-Onset FSHD Chapter has a monthly Parent Roundtable – if you are a parent or guardian of a young person with Early-Onset FSHD, you can find more information about this chapter here. This chapter is led by parents, for parents. Their aim is to connect families, deepen community, and support FSHD families wherever they may be.

Watch the video podcast premiere on the 4th Thursday of every month, either on YouTube or Facebook. Share your thoughts, or post questions in the comments section. You can also access the podcast on any streaming service within a few days of the video premiere.

Mark your calendar and invite your friends to a listening party! Chat with fellow viewers in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice.

Details

Date:
Oct 27, 2022
Time:
8:00 pm - 9:00 pm
Event Categories:
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Website:
https://www.facebook.com/FSHDSociety/