9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT
On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.
This month, our guest is Amanda Hill. We are excited to introduce you to Amanda – she is FSHD Society’s newest staff member as the Director of Research and Patient Engagement. Amanda has been part of the FSHD Society community for many years as the Colorado Chapter Director, and has a personal connection to FSHD. She will be sharing about her role as well as information about True Cost of FSHD.
Watch the video podcast premiere on the 4th Thursday of every month, either on YouTube or Facebook. Share your thoughts, or post questions in the comments section. You can also access the podcast on any streaming service within a few days of the video premiere.
Mark your calendar and invite your friends to a listening party! Chat with fellow viewers in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice.