Lighting the Way to a Cure

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FSHD Society Radio on our Early-Onset chapter

Oct 12 @ 8:00 pm - 9:00 pm

FSHD Society Radio Show

Tuesday, October 12

Ally Roets & her son, Sam
Ally Roets & her son Sam.

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT

This month’s guests are Ally Roets and her son, Sam Ray. Together with Kristin Zwickau, they are co-leading our early-onset FSHD chapter for families that have members who developed symptoms of FSHD in early childhood. This form of FSHD brings unique challenges. We seek to connect early-onset families around the world through this chapter so that they can share their knowledge and advocate for research and treatments.

Watch the podcast premiere on the 2nd Tuesday of every month, either on YouTube or Facebook. Share your thoughts, or post questions and comments in the comments section. You can also access the podcast on most any streaming channel within a few days of the video premiere.

Mark your calendar. Invite your friends to a listening party and chat with fellow viewers in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice.

Details

Date:
Oct 12
Time:
8:00 pm - 9:00 pm
Event Categories:
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Venue

You Tube

Organizer

FSHD Society
Phone:
(781) 301-6060
Email:
info@FSHDSociety.org
View Organizer Website