9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT
This month’s guests are Ally Roets and her son, Sam Ray. Together with Kristin Zwickau, they are co-leading our early-onset FSHD chapter for families that have members who developed symptoms of FSHD in early childhood. This form of FSHD brings unique challenges. We seek to connect early-onset families around the world through this chapter so that they can share their knowledge and advocate for research and treatments.
Watch the podcast premiere on the 2nd Tuesday of every month, either on YouTube or Facebook. Share your thoughts, or post questions and comments in the comments section. You can also access the podcast on most any streaming channel within a few days of the video premiere.
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