Lighting the Way to a Cure

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FSHD Society Radio on our Early-Onset chapter

Aug 10 @ 8:00 pm - 9:00 pm

FSHD Society Radio -small

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT

This month’s guests are Ally Roets and her son, Sam Ellis. Together with Kristin Zwickau, they are co-leading our early-onset FSHD chapter for families that have members who developed symptoms of FSHD in early childhood. This form of FSHD brings unique challenges. We seek to connect early-onset families around the world through this chapter so that they can share their knowledge and advocate for research and treatments.

Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts, or post questions and comments in the YouTube comments section. You can also watch the recording on Facebook or access the podcast on most any streaming channel.

Mark your calendar. Invite your friends to a listening party and chat with fellow YouTube viewers in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice.


Aug 10
8:00 pm - 9:00 pm
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FSHD Society
(781) 301-6060