Lighting the Way to a Cure

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Aug

10

FSHD Society Radio -small

FSHD Society Radio on our Early-Onset chapter

Aug 10 @ 8:00 pm - 9:00 pm

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT This month's guests are Ally Roets and her son, Sam Ellis. Together with Kristin Zwickau, they are co-leading our early-onset FSHD chapter for families that have members who developed symptoms of FSHD in early childhood. This form of FSHD brings unique challenges. We seek to connect early-onset families around the world through this chapter so that they can share their knowledge and advocate for research…

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