Lighting the Way to a Cure

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FSHD Society Radio – GenZ of FSHD

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Jul 13 @ 8:00 pm - 9:00 pm

FSHD Society Radio -small

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT

This month’s radio show guest is Heloise Hoffmann, who is not only the director of our Southwest Florida chapter and author of a new research paper on sleep and FSHD, but she is also a member of the team of young leaders who have recently formed “GenZ of FSHD,” a group of youth activists. They want to let their peers know that no one needs to deal with this diagnosis alone, and that the youth have tremendous power to raise awareness and advocate to treatments and rights. Are you a GenZ with FSHD? Call us!

Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts, or post questions and comments in the YouTube comments section. You can also watch the recording on Facebook or access the podcast on most any streaming channel.

Mark your calendar. Invite your friends to a listening party and chat with fellow YouTube viewers in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice.

Details

Date:
Jul 13
Time:
8:00 pm - 9:00 pm
Event Categories:
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https://www.youtube.com/FSHDSociety

Venue

You Tube

Organizer

FSHD Society
Phone:
(781) 301-6060
Email:
info@FSHDSociety.org
View Organizer Website