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Join host Tim Hollenback on Facebook Live for a chat with Justin TurfTank VanLanduit, who was diagnosed with FSHD in 2013 at the age of 33. “It was a blow to be told I have a degenerative neuromuscular disease that has no cure,” Justin recalls. “I’ve always been very active with sports, but worse than the realization that some of the things I enjoy could be taken away was thinking about how my diagnosis could greatly affect my family.” A few years after his diagnosis, Justin’s family participated in its first MDA Muscle Walk. He called the experience an “eye opener” and since then has participated in the MDA walk each year, along with the inaugural FSHD Walk & Roll in Chicago.