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FSHD Society Sequester Camp – Exploring the National Registry for FSHD with Artificial Intelligence

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May 7, 2020 @ 1:00 pm - 2:00 pm

FSHD Society Sequester Camp
John Hogan
John Hogan

Every Thursday, at 1:00 pm ET, we are hosting our “FSHD Society Sequester Camp” webinar series, which will run weekly at the same time for as long as it’s needed. Anyone can join from anywhere for free. We’ll be sharing information, resources, and social support. For your personalized link to join the webinar, click on the link below.

Join us this week for a webinar on “Exploring the National Registry for FSHD with Artificial Intelligence” given by Jeffrey Statland, MD and John Hogan, Principal Engineer, AIBytes, LLC. The National Registry for FSHD collects and tracks clinical information of how symptoms change over time in patients. In this session, we will describe how we are using Artificial Intelligence to search for patterns of information in the Registry which otherwise would be hidden. We are especially searching for patterns which may indicate how fast FSHD progresses in patients.

John Hogan has over 20 years’ experience in technology development at IBM where he held various management and technical positions including Chief of Staff for the Watson AI division. Currently, John is the Founder and Principal Engineer of AIbytes, a specialty AI consulting firm, based in the beautiful Hudson Valley of New York.

Jeffrey Statland, MD, is co-director of the FSHD Clinical Trial Research Network and assistant professor of neurology at the University of Kansas Medical Center. He is co-principal investigator of ReSOLVE, a large, ongoing, clinical outcomes study for FSHD, and has also conducted extensive research on the FSHD national registry.

Please note that we will be recording these webinars, and will have information and updates on a regular basis.


May 7, 2020
1:00 pm - 2:00 pm
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