During this time of uncertainty, we want you to know you are very much in our thoughts. Many of you already feel isolated, and now it is even harder to get out, or for others to visit. The fragile webs of support you’ve built to help you get by are being shredded. We care about what’s happening and are doing everything we can to help and strengthen the bonds of community. Together, we will get through this turbulent time.
Starting this Thursday, at 1:00 pm ET, we are launching our “FSHD Society Sequester Camp” webinar series, which will run every week at the same time for as long as it’s needed. Anyone can join from anywhere for free. We’ll be sharing information, resources, and social support. At our first webinar this week, Mark Stone and June Kinoshita will share ideas and answer your questions. For your personalized link to join the webinar, click on the link below.
Please note that we will be recording these webinars, and will have information and updates on a regular basis.