1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT
In this presentation, Heloise Hoffmann will share her work focusing on understanding the relationship between FSHD, sleep, and pain. Sleep is essential, but it could be affected by FSHD. To confirm this link, Heloise conducted a survey of FSHD Society members regarding self-reported sleep quality and daytime sleepiness in the largest sample surveyed to date. She will discuss her research process, findings, and implications.
Heloise is an FSHD patient who feels passionate about activating the community to join the march for a cure, and this led her to found the Southwest Florida Chapter and take part in an initiative to maximize youth involvement. She strives to get involved in science and research for FSHD.
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