FSHD University: Managing FSHD Without Medication

Thursday, November 19 at 1:00 pm ET

Presenter: Enza Leone, PhD, University College London Hospitals NHS Foundation Trust 

Living well with FSHD involves much more than medication—it’s about adopting practical strategies that help maintain function, independence, and quality of life. In this webinar, Dr. Enza Leone, research physiotherapist at the Queen Square Centre for Neuromuscular Diseases and University College London Hospitals, will share evidence-based recommendations developed in partnership with people living with FSHD, caregivers, and clinical experts. Participants will learn the “10 Top Tips” for non-pharmacological management, including staying active, exercising safely, managing pain and fatigue, and understanding considerations around shoulder surgery. Join us for practical guidance and actionable strategies that can help you navigate everyday life with FSHD and make informed decisions alongside your healthcare team.