1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT
The FSHD Society is conducting a new survey-based study called “The True Cost of FSHD” and is putting out a call to the FSHD community to participate. This is one of the most important and urgent surveys we have ever done. It is the first of its kind in the United States. Its purpose is to learn about the “hidden” costs to patients with FSHD and their family members. The results will influence FDA, drug companies, policy makers, and insurance companies. Join us to learn how you can participate in this history-making study.