FSHD University Webinar – Managing pain in individuals with FSHD

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT

Around 70-80 percent of individuals diagnosed with facioscapulohumeral muscular dystrophy report that pain is a significant part of their condition. There has been relatively little research or discussion in the medical literature about the nature and cause of pain in FSHD, and on strategies to manage it. In this webinar, neurologist Kathy Mathews, psychologist Krista Kohl, and physical therapist Shelley Mockler discuss multidisciplinary approaches to managing pain.

Katherine D Mathews, MD, FAAN, is Professor of Pediatrics and Neurology and the Vice Chair of Clinical Investigation for the Department of Pediatrics at the University of Iowa Carver College of Medicine. Director of the clinical project at the University of Iowa’s Wellstone Muscular Dystrophy Cooperative Research Center, co-PI for the Iowa NeuroNext site and MD STARnet sites. Co-director of the University of Iowa MDA clinic.

Shelley Mockler, PT, MPT, DSc is a physical therapist and Clinical Specialist at the Center for Disabilities and Development, part of the University of Iowa Stead Family Children’s Hospital. Shelley has worked with children and adults with neuromuscular disorders for over 20 years. She is actively engaged in both clinical care and research in neuromuscular disorders. Shelley is a Board-Certified Clinical Specialist in Pediatric Physical Therapy and a certified Assistive Technology Professional.

Krista Kohl, PhD, is a Pediatric Psychologist in the Division of Developmental and Behavioral Pediatrics, at the University of Iowa Stead Family Children’s Hospital. Dr. Kohl works with an interdisciplinary team as part of the Comprehensive Pain Clinic, Abdominal Pain Clinic, and Headache clinic. Dr. Kohl provides outpatient psychotherapy for children and adolescents with chronic pain and comorbid anxiety, depression, or other psychosocial stressors. She also provides inpatient consultation for children and adolescents struggling with acute and chronic pain conditions.