- Who We Are
- Understanding FSHD
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Lighting the Way to a Cure
3:00 PM ET 2:00 PM CT | 1:00 PM MT | 12:00 PM PT
This month, we’ll be talking about fundraising! Maybe this sounds intimidating, but learning how to get your story out there and build a team of friends, family, and other supporters to raise donations is incredibly empowering. Get to know your fellow GenZers at this fun gathering! We’ll be planning a fun and informative program for you. We hope to see you there!
Held every other month on the third Sunday at 3:00 pm ET. This is the virtual meeting of the GenZ of FSHD group, for people with FSHD who were born after the mid-1990s (with some wiggle room). It is open to people from everywhere who are in this age group. Our purpose is to discuss topics of interest to those at this stage in life, and to have fun together. We respectfully ask everyone to abide by our age guidelines. Thank you!
Follow @genz_of_fshd on Instagram to stay up to date. Got any questions, requests, or comments? Email them to: firstname.lastname@example.org.