Please join us for a VIRTUAL gathering of local FSHD families and friends in the Greater Toronto Area.
Let’s re-connect with old friends, and get to know new friends!
While COVID-19 prevents us from meeting in person, we can meet virtually over zoom in hopes that one day soon we are able to meet in person.
Hosted by Beth Johnston, fellow FSHD family, and Chief Community Engagement Officer of the FSHD Society. We will also be joined by Mark Stone, CEO of the FSHD Society, and Anne Harland of the Canadian FSHD Network.
We will share updates on the happenings in therapy development, clinical trials, and in the FSHD Community overall.
When: Saturday December 5th, 11a-12p Eastern Time
Where: From the comfort of your own home, virtually via zoom (link below)
We hope you can join us!
Please RSVP to Beth Johnston at Beth.Johnston@FSHDSociety.org to let us know you’ll be there!
Join from you computer or laptop:
Meeting ID: 835 8585 7888, Passcode: FSHD
OR by phone: 646-558-8656, Meeting ID 83585857888