Kansas City FSHD 360

10:00-3:00 PM Central Time

The FSHD Society, in collaboration with our Kansas chapter and the University of Kansas Medical Center, is hosting this year’s Kansas City FSHD 360 conference. The University of Kansas is the epicenter of FSHD research in the U.S. in its role as the coordinating center for the international FSHD Clinical Trial Research Network. Dr. Jeffery Statland and his stellar team of clinicians and researchers will answer your questions about your health, genetic counseling and testing, physical and occupational therapy, and much more. Learn about cutting-edge research at KUMC as well as latest updates on FSHD therapies. Don’t miss out on the opportunity to meet patients and families throughout Kansas and beyond, and network with FSHD Society leaders and activists in our community!

The agenda will be posted closer to the date of the meeting.

Location

Kauffman Foundation Conference Center
4801 Rockhill Road
Kansas City, MO 64110

Registration for in-person and virtual attendees will open soon. Revisit this page for updates.