Lighting the Way to a Cure

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LA Connects chapter meeting

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Apr 27, 2019 @ 1:00 pm - 5:00 pm

Please join us for the next LA Connects member meeting! A gathering for people with FSHD and their support network from the Los Angeles region, for networking, learning, advocacy, and more! Organized by the FSH Society and the LA FSHD Connects volunteers, the meeting provides opportunities for people to strategize about what our needs are as a group, whether it is physical therapy, caregiving, mobility aids, physician referrals, etc. We are creating a community of people who are connected by FSHD who wish to find support, answers, and empowerment.

Our agenda for this meeting will include:

  1. Ghostly Walk n Roll for late October 2019
  2. Resource center on website
  3. Zoom meetings- dates

Please bring a light snack to share!

RSVP to Chapter Director Laurie Heyman ( or 310-200-3589).

Directions (Our venue is ADA compliant with plenty of parking):

By Freeway: 10 Fwy West. Exit Bundy South. Continue south on Bundy to College Drive. Right on College Drive. If you turned into Arport Drive, you are in the wrong place. Turn around, make a right at the top of the ramp, onto Bundy, and a hard right into the next driveway.

By Surface Streets:
From the South: North on Centinela/Bundy S to College Drive. Left into College Drive. Note: Bundy South becomes Centinela south of the campus location.
From the north: South on Bundy Drive to College Drive. Right into College Drive.


Apr 27, 2019
1:00 pm - 5:00 pm
Event Categories:


Santa Monica College Bundy Campus
3171 S. Bundy Drive, Room 121 - Los Angeles
Los Angeles, CA United States
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