We’re excited to invite you to our next Multi-Chapter Meeting, a virtual event that brings together several FSHD chapters for updates and peer connection. This is part of a new national meeting series designed to strengthen our chapter network and keep our community informed and connected.
What to Expect:
Advocacy Updates (30 minutes)
– Anna Gilmore, Sr. Director of Education & Advocacy at the FSHD Society, will share updates, progress, and next steps in government advocacy for 2025. She’ll review our PRMRP campaign, top policy priorities, and highlight late-breaking issues like NIH and Medicaid changes.
Zoom Breakout Conversations (60 minutes)
– After the update, you’ll head into Zoom breakout rooms by chapter or region for informal conversation and connection. We won’t return to the main room, so feel free to stay and chat as long as you’d like!
Register Here
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