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New England FSHD 360

Nov 2 @ 11:00 am - 4:00 pm

Co-hosted by the UMass Wellstone Center for FSHD and the FSHD Society

FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in New England, as well as from biopharmaceutical companies that are working on FSHD therapies. Get answers to your questions about your health, maintaining optimal function through physical therapy, exercise, assistive devices, and more. Don’t miss out on the opportunity to meet patients and families and network with FSHD Society leaders and activists in our community! 

If you have questions you would like to ask the companies that are developing treatments for FSHD, please send them to June Kinoshita by October 18th. 

The day begins with a pre-conference science talk and lab tour. Here’s the preliminary agenda.

There will also be an opportunity for individuals to donate a blood sample for a biomarker study. Scroll down for more information.

Lunch will be served. The venue is wheelchair accessible. Free event parking in the adjacent Employee Parking Garage (entry from South Road near Plantation Street (see CAMPUS MAP).

Date and location
Saturday, November 2 , 2024
Doors open: 10:00; Lab tour: 11:00; Conference: noon-4:00 PM
University of Massachusetts Chan Medical Center

New Education and Research Building, Room N1-1400 
366 Plantation St, Worcester, MA 01605 

Deadline to register is October 28

 

PARTICIPATE IN RESEARCH! 

During the event, there will be an opportunity in the afternoon for meeting attendees to contribute to an ongoing FSHD plasma biomarker study being conducted by the UMass Wellstone Program.  Dr. Charlie Emerson’s lab is analyzing plasma from FSHD and controls to identify novel biomarkers that might accelerate future FSHD clinical trials.  This will involve reviewing a consent form with our staff and being willing to contribute a blood sample (2 tubes, which is 2-3 teaspoons of blood).  Patients, spouses, and family members can contact Catherine Douthwright to find out more information ahead of the meeting and to review the consent form.

Catherine Douthwright, PhD, CCRP
Phone: (508) 856-1524
Catherine.Douthwright@umassmed.edu

 Download the study brochure here: FSHD Biomarker Study details

 

Details

Date:
Nov 2
Time:
11:00 am - 4:00 pm
Event Categories:
, , ,

Organizer

FSHD Society
Phone
(781) 301-6060
Email
fshdmeetings@fshdsociety.org
View Organizer Website

Venue

University of Massachusetts Medical Center
Plantation Street
Worcester, Massachusetts 01605 United States
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