Nov 2 @ 11:00 am - 4:00 pm
Co-hosted by the UMass Wellstone Center for FSHD and the FSHD Society
FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in New England, as well as from biopharmaceutical companies that are working on FSHD therapies. Get answers to your questions about your health, maintaining optimal function through physical therapy, exercise, assistive devices, and more. Don’t miss out on the opportunity to meet patients and families and network with FSHD Society leaders and activists in our community!
If you have questions you would like to ask the companies that are developing treatments for FSHD, please send them to June Kinoshita by October 18th.
The day begins with a pre-conference science talk and lab tour. You can also volunteer to donate a blood sample for an important research study (see below the Register button for details). Here’s the preliminary agenda.
Lunch will be served. The venue is wheelchair accessible. Free event parking in the adjacent Employee Parking Garage (entry from South Road near Plantation Street (see CAMPUS MAP).
Date and location
Saturday, November 2 , 2024
University of Massachusetts Medical Center
New Education and Research Building, Room N1-1400
366 Plantation St, Worcester, MA 01605
Deadline to register is October 28
